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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: May 20th, '19, 21:46    


Audriella

Joined: Feb 21st, '19, 01:13
Posts: 546
Hugs: 14360
Okay, while we’re on the topic of death, I’m kinda facing a semi-relevant situation.

I failed a swallow study and docs and therapists are pushing me to a feeding tube. My dad is too.

I don’t want one, even if it means dying of pneumonia possibly early. I have a living will that says I don’t want one.

My dad says I’d be ‘throwing away my life’ but I want to die aware and making my own choices. Plus, a PEG tube won’t stop pneumonia and has risks of infection.

Complicating all of this, my mom wants to void being my power of attorney and my dad is the alternate. I think if he becomes my poa he can make medical decisions for me?

I’d try to update my living will and power of attorney but i live with my dad and that would cause conflict.

I’m really lost.

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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: May 23rd, '19, 01:32    


Moi

Joined: Jun 17th, '08, 21:48
Posts: 54000
Hugs: 412134
Mood: Know you're not alone.
Website: http://seppukuaddict.deviantart.com/
Location: \8u/

That is so shitty ;;
I'm so sorry you're so sick.
I don't really know what to tell you.

I know my parents told me that when it's their time - just let them go.
They don't want to be held back.
And it's like...I want them to stay here xD
But I'd have to respect their wishes because its their choice to make :\

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Image

"I'll miss the winter
A world of fragile things
Look for me in the white forest
Hiding in a hollow tree (come find me)
I know you hear me,
I can taste it in your tears."



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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: May 29th, '19, 21:37    


light_sucks

Joined: Jul 17th, '08, 06:15
Posts: 19186
Hugs: 184318
Mood: vaguely alive
Moi - Cuz they suck balls, man. They suck balls.
I've got a place representing me this time so I hope that it goes better. I have two doctors appointments set up to check me out. Hopefully they actually look at me this time instead of just glancing at me from far away.

That is sad. But at least y'all didn't have to worry about everything.

Yeah, I have mixed feelings on throwing out some of her stuff. Other stuff I am totally okay with throwing away because she was a bit of a hoarder. lol.

I also don't have a lot of stuff. I guess I would give it all to my husband. If he's dead too then it all goes to my best friend and my niece.

I would want to give all my stuff away on my accounts too but I don't know who I would trust with that.


Audriella - Honestly it's your body and your choice. If you don't want a feeding tube then don't get one. Your dad doesn't own you.

I would change your POA if he's not cooperating with you.
Do you have any aunts/uncles or cousins that might be willing to do it?

There also might be resources online that you could find to help you. Like disability advocates in your area? They might be able to provide someone who will follow your wishes.



I'm kind of on the fence about dying. If I'm on life support and the doctor says there's almost no chance of me waking up, go ahead and pull the plug. If they do say that I might recover then I would want them to wait a little while. See if I do wake up. Though if my way of life would be any more difficult than it currently is, fuck that. Just let me go. lol.

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They/Them pronouns, please.

Call me Moss.

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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: Jun 2nd, '19, 23:35    


Audriella

Joined: Feb 21st, '19, 01:13
Posts: 546
Hugs: 14360
My dad and I have had a bit of a misunderstanding, I think. So that’s cleared a bit, thankfully.

I found a local clinic that may deal with these kinds of things, so trying to get their opinion on the value of a feeding tube for me.

I also talked, sort of, to a friend’s nurse mom and that helped. Really, I don’t think a feeding tube is a good idea, and I’m trying to make that very, very clear.

Ugh, I don’t need all this nonsense.

Good luck getting disability light! It’s a really terrible process.

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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: Jun 2nd, '19, 23:51    


Kitalpha Hart

Joined: Jun 4th, '14, 04:06
Posts: 11520
Hugs: 21250
Mood: I'm poor (´Д` )
Location: The BASARAverse
Idk about disability, prolly not, but mom and dad have gimp passes
Dad has a blue one
Mom has a red one
Mom's comes with snarky comments

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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: Jun 3rd, '19, 01:54    


Moi

Joined: Jun 17th, '08, 21:48
Posts: 54000
Hugs: 412134
Mood: Know you're not alone.
Website: http://seppukuaddict.deviantart.com/
Location: \8u/

Light: My mom had to get a lawyer to get hers after she got denied like three times.
Then she went away and came back and now they're saying she's not disabled.
1. If she wasn't disabled - how'd she get it the first time?
2. Her disability is permanent. It's not going to heal. She didn't get better.
Like y'all motherfuckers already know she's disabled because she won and got it from you.


That's true. Do you trust your hubby 8u?
He might not play it or know anyone, but you can make a list \u8/

I know Aki's boyfriend from here died, and he had given others his items. I still have most of the ones he gave me. It's sad, but not uncommon to give stuff away on sites like that.

I always have hope that people will come out of comas. I mean, I've heard stories of people surviving things they should not have.
I remember this little boy having something fall on him and it destroyed a lot of his organs and he had like a 13% chance of surviving. He survived and grew up and does stuff now \8u/

I had a friend when I was little and she had one lung or one functioning lung and doctors told her she wouldn't live past 5 and she made it to 12 or 13. She did die, but she lived longer than expected.

I feel conflicted because I do believe in God, but I will cling to this fucking life as long as I can xD
I'm a stubborn bitch, I'll leave when I'm ready >Bu
And hopefully God won't beat me uB

My mom went into cardiac arrest and was brought back twice, but she was in a coma. They told ME it was my decision to leave her on or take her off.
Like...how the fuck can I decide that? I don't want my mom to die, but I don't want her to be stuck in her body.

Audriella: Good luck with the clinic. I really hope you get positive news out of them 8u
You know, doctors aren't always right, so it's best to get a second or third opinion from others that know about that stuff.

Kit: You mean disabled things for your car? I didn't know they make red ones 8U
I'd love a custom one. I mean, I don't have one and hope I never will need one, but I want that shit customized 8U

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Image

"I'll miss the winter
A world of fragile things
Look for me in the white forest
Hiding in a hollow tree (come find me)
I know you hear me,
I can taste it in your tears."



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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: Jun 3rd, '19, 05:56    


Kitalpha Hart

Joined: Jun 4th, '14, 04:06
Posts: 11520
Hugs: 21250
Mood: I'm poor (´Д` )
Location: The BASARAverse
Red is six months
Blue is...several years

Temporary versus permanent

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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: Jun 3rd, '19, 20:19    


Moi

Joined: Jun 17th, '08, 21:48
Posts: 54000
Hugs: 412134
Mood: Know you're not alone.
Website: http://seppukuaddict.deviantart.com/
Location: \8u/

Aww...You don't even get to choose a color 8,u

I don't usually see any people in disabled spots without those, which is good.
It irks me when perfectly healthy people park in them.
Like I'm not in very good shape and my ass won't park in one xD
I remember seeing this social experiment where these young women in heels parked in a handicap spot and this man in a wheelchair was asking them to move and they were like "Nah~ Wearing heels counts since it's hard to walk in them ;]"
I knew it was fake, but I wanted to kick the car out from under them xD

(0) (0)
Image

"I'll miss the winter
A world of fragile things
Look for me in the white forest
Hiding in a hollow tree (come find me)
I know you hear me,
I can taste it in your tears."



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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: Jun 3rd, '19, 20:29    


Kitalpha Hart

Joined: Jun 4th, '14, 04:06
Posts: 11520
Hugs: 21250
Mood: I'm poor (´Д` )
Location: The BASARAverse
I read that there was a place that had been full of people who were extremely bad about the handicap parking only to where those with wheelchairs took spare and blocked off all the parking spots with the wheelchairs with the "justifications" people use to try and get out of their illegal parking
Shit like "I'll only be a minute"
That place saw a severe drop in that problem after that stunt, they left the wheelchairs out all day, forcing the inconsiderate fuckwits to park farther away in the parking spots they're supposed to use
And lesson learned, for most of them

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 Post subject: Re: Debralynn's Hangout ^.^ Come chat with me!
Posted: Jun 4th, '19, 01:43    


Moi

Joined: Jun 17th, '08, 21:48
Posts: 54000
Hugs: 412134
Mood: Know you're not alone.
Website: http://seppukuaddict.deviantart.com/
Location: \8u/

The problem with "I'll only be a minute" is what if in that minute, someone needed that spot but they couldn't get it?
Maybe they too would only need a minute but now they gotta wait because of your ass parking illegally >>

(0) (0)
Image

"I'll miss the winter
A world of fragile things
Look for me in the white forest
Hiding in a hollow tree (come find me)
I know you hear me,
I can taste it in your tears."



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