Kingdom of Knuffel

Ohhh, congratulations Nikki!!! :)
I hope your pregnancy will go smoothly with no complications and the morning sickness will vanish soon!
All the best to you, your partner, and the little one!

MissNikki; Congrats! You’ll be a great mom; I’m so happy for you! Best of luck!

light; I technically had targeted therapy, where drugs targeted genetic markers on my tumors. My tumors are benign, but they do cause problems.

College sucked. I traveled from Austin to Houston and back every three weeks for a year then went deaf. Still graduated early, but my GPA cratered.

Congrats Nikki!!! You will have your hands full believe me! lol Keep us in the loop and let us know name!

Sorry I haven't been on much. I took Joslyn to Jurassic Quest last Saturday and I was worn out. I'm just now feeling up to be on a bit.

Few of the images of Jurassic Quest. The last one is a short video, just look for the tye dye shirt. XD
https://i.imgur.com/jpEe2mE.jpg
https://i.imgur.com/Zd1mbxO.jpg
https://i.imgur.com/PAjQXIz.jpg
https://i.imgur.com/hBlIrjE.jpg
https://i.imgur.com/ZaNhpjY.jpg
https://i.imgur.com/oI1VvaF.jpg
https://i.imgur.com/PqqzZca.jpg
https://i.imgur.com/tfffYuW.jpg
https://i.imgur.com/F92FOR2.jpg
https://i.imgur.com/WRwRxol.mp4

DC: Cutie! Those pictures made my day so much better! :D

(It was a lousy day, but seriously that smile. C:)

I'm glad! I was up till about midnight and I woke up at six and I have no idea why I'm still awake.

So how is everyone?

Hey DC! This is late, sorry!

I’m stressed and exhausted. Dealing with a major health question and having to find most of the answers/information on my own, plus wavering support from family. So not great.

But my friends are really helping. :D

What's the health problem? Are you alright?

A test showed pudding-like food goes into my lungs when I eat. Nothing else was tested, and, Imo, really bad conclusions were drawn. But that can’t be changed.

I was supposed to be on no food by mouth and feeding tube in May. The goal of the feeding tube is to prevent stuff from going into my lungs [aspiration]...but I can’t find solid evidence it actually does that? There are two main ways for aspiration to still happen: from oral secretions and from gastric [stomach] emptying. But I’m not a doctor, obviously. This is what I spent the past week doing.

The concern with aspiration is that it can be fatal.

If I was otherwise healthy, the decision would be easy. But I have a severe chronic illness, and a feeding tube would take away a significant portion of my independence, which I value greatly. I feel like it may prolong my death, and that terrifies me.

I want to make a logical decision, but I also don’t want to live in fear. I don’t think that’s truly living.

Man that is scary. I hope things can be taken care of and you don't have to live in fear.

I wish I could help ease your mind, but in this case I've got nothing. I feel useless.

So do I.

I’m tired all the time now, and I worry.

I’m fairly useless as a person, to put it bluntly, which really makes me wonder about the value of putting a feeding tube in.

A doctor with ALS wrote, “As miraculous as my life is, I want out of my body,” and I am so close to identifying with that. Which isn’t to say I don’t value life.